The Erbs Palsy Group

The Erbs Palsy Group which is a charity registered in the UK, was established in 1991 and offers advice and information on obstetrical brachial plexus paralysis. The group currently has over 1200 registered families and offers help to parents and professionals alike. The group carries out a number of functions which includes putting parents in touch with one another, production of a quarterly magazine/newsletter, gives help to obtain medical information, advises on benefits and aids and writes and distributes a wide range of information sheets. In addition The Erbs Palsy Group holds an annual event for families and holds education days for professionals. Their aim is to enhance public knowledge and awareness and to offer help to those suffering from this condition to enable them to achieve their full potential.

The Erbs Palsy Group was established in 1991 by the mother of a child suffering from this condition following a meeting of twelve families each of whom had a child with Erbs palsy. A management committee was established which thereafter started a campaign to raise awareness in the local press. The number of members of the group grew steadily until 1994 at which point publicity of The Erbs Palsy Group on national television enhanced membership numbers which today stand in excess of 1200 families and over 120 professional members.

In addition to assisting the families of children suffering from this condition The Erbs Palsy Group also operates a series of one day conferences for medical professionals and has to date provided guidance on best practice procedures to over 1100 physiotherapists, occupational therapists, midwives and paediatricians.

The Erbs Palsy Group produces a large number of useful information sheets as follows:-

  • obstetrical Erb's palsy
  • nerve grafts
  • shoulder release
  • latissimus dorsi tendon transfer
  • claiming disability living allowance.
  • claiming invalid care allowance
  • attending a DLA Tribunal
  • obtaining your maternity records
  • staying in hospital
    • The Portland, London
    • Derby Childrens Hospital
    • Leeds General Infirmary
  • making a clinical negligence claim
  • toys and equipment
  • information for schools
    • nursery and primary schools
    • middle and upper schools
  • preparing for secondary school tips for students
  • moving up to secondary school tips for parent

This website is operated by personal injury solicitors and neither endorses, nor represents The Erbs Palsy Group, nor has any affiliation or business relationship or any other connection with this charity.


^^ back to the top